Sam's London Marathon for The Sandcastle Trust
Samantha Crouch
My Story
On 27th April 2025, I will be attempting to cover 26.2 miles running the iconic London Marathon course.
It will be 10 years since I last ran London, I very much doubt I will get anywhere near the finish time from 2015, however its the taking part that counts!
I am raising money for the wonderful Sandcastle Trust, who work alongside families living with a rare genetic condition. 12 years ago, my daughter Hollie was diagnosed with a rare genetic condition which has a profound impact on life on a daily basis. Hollie has a severe learning disability as a result, yet every day she wakes up with a smile on her face and tackles every challenge that comes her way - she is one determined and strong willed little girl!
The Sandcastle Trust have provided us with many experiences as a family, that have created some fantastic memories, and as the Chair of Trustees, its my mission to raise awareness and much needed funds to continue to support families like ours.
As a small charity, every penny really does count as we try to reach more families.
The Sandcastle Trust walks alongside families living with a rare genetic condition to help them build lasting positive family memories, strengthen their family relationships, and improve emotional wellbeing and resilience.
We do this through various Sandcastle Support Services. Through this unique service offering, consisting of bespoke family respite, wrap around fun family engagement activities, counselling, peer support and information we are able to support families living with a rare genetic condition based on their individual needs from across the UK.
There are approximately 6,000 diagnosed genetic conditions. Each affects less than 0.1% of the UK’s population, but together they are one of the greatest causes of disability and early death and affect the lives of 3 million people in the UK (source: National Human Genome Research Institute). Collectively, therefore, they are not rare at all.
Many genetic conditions are life-limiting, all are life-changing.
Thank you for your support and donation, it really means the world to us.
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Target
£3,500
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Raised so far
£4,505
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Number of donors
60
My Story
On 27th April 2025, I will be attempting to cover 26.2 miles running the iconic London Marathon course.
It will be 10 years since I last ran London, I very much doubt I will get anywhere near the finish time from 2015, however its the taking part that counts!
I am raising money for the wonderful Sandcastle Trust, who work alongside families living with a rare genetic condition. 12 years ago, my daughter Hollie was diagnosed with a rare genetic condition which has a profound impact on life on a daily basis. Hollie has a severe learning disability as a result, yet every day she wakes up with a smile on her face and tackles every challenge that comes her way - she is one determined and strong willed little girl!
The Sandcastle Trust have provided us with many experiences as a family, that have created some fantastic memories, and as the Chair of Trustees, its my mission to raise awareness and much needed funds to continue to support families like ours.
As a small charity, every penny really does count as we try to reach more families.
The Sandcastle Trust walks alongside families living with a rare genetic condition to help them build lasting positive family memories, strengthen their family relationships, and improve emotional wellbeing and resilience.
We do this through various Sandcastle Support Services. Through this unique service offering, consisting of bespoke family respite, wrap around fun family engagement activities, counselling, peer support and information we are able to support families living with a rare genetic condition based on their individual needs from across the UK.
There are approximately 6,000 diagnosed genetic conditions. Each affects less than 0.1% of the UK’s population, but together they are one of the greatest causes of disability and early death and affect the lives of 3 million people in the UK (source: National Human Genome Research Institute). Collectively, therefore, they are not rare at all.
Many genetic conditions are life-limiting, all are life-changing.
Thank you for your support and donation, it really means the world to us.
