About us

The Sandcastle Trust’s mission is to reduce inequalities in emotional health and wellbeing outcomes for families living with a rare genetic condition.

We walk alongside families living with a rare genetic condition to help them build lasting positive family memories, strengthen their family relationships, and improve emotional wellbeing and resilience.

We do this through various Sandcastle Support Services. Through this unique service offering, consisting of bespoke family respite, wrap around fun family engagement activities, counselling, peer support, signposting and information we are able to support families living with a rare genetic condition based on their individual needs from across the UK.

We also increase public awareness of the inequalities and barriers to emotional health and wellbeing that families living with rare genetic conditions face and affect positive change through our work.